Family Support



Diagnosis-Specific Support

Find information, support groups and more from agencies dedicated to particular conditions.

Resource Contact Information

Alopecia Areata

National Alopecia Areata Foundation

Apraxia


Childhood Apraxia of Speech Association of North America (CASANA)

Attention Deficit and Hyperactivity Disorder (ADHD)

Children and Adults with Attention Deficit/Hyperactivity Disorder (CHADD)

Arthritis

Arthritis Foundation, Western PA Chapter

Autism

ABOARD's Autism Connection of PA
AHEADD (Achieving in Higher Education)
Allegheny Family Network
Autism Center of Pittsburgh (Affiliate of AutismLink)
Autism Society of Pittsburgh
Children's Hospital of Pittsburgh of UPMC Autism Center
AAWARE Collaboration
Dedicated to promoting awareness, prevention of wandering by people with autism.
InVision Human Services (formerly SharpVisions)
Behavioral health, community supports such as habilitation and short-term respite, therapeutic camps.
New Story
Applied Behavior Analysis consulting and therapy; social skills, summer camp, family-based services, crisis intervention.
Parents in Toto Autism Resource Center
Pressley Ridge
The Watson Institute
Counseling, wraparound and outpatient services for children on the austism spectrum , among other services.
Wesley Spectrum Services
Special education, mental health, family support services, including autism.
Western Psychiatric Institute and Clinic of UPMC
Western PA Regional Center for Autism/Merck Child and Adolescent Outpatient Clinic
PA Dept. of Public Welfare
Bureau of Autism Services

Brain Injury

Acquired Brain Injury Network of PA, Inc.
Brain Injury Association of PA
BrainSTEPS – Strategies Teaching Educators, Parents & Students
A school re-entry program for children with brain injuries. Contact List for Local Programs:
Pittsburgh City Schools
Allegheny IU 3

Cancer

Cancer
American Cancer Society, Greater Pittsburgh
Cancer Caring Society
Free counseling, emotional support, hotline, support groups for people and families facing cancer.

Cerebral Palsy

Children's Hospital of Pittsburgh of UPMC
Cerebral Palsy Clinic
CLASS of Pittsburgh (Community Living and Support Services)
Education, advocacy, assistive technology, independent living, community-based supports.

Crohn's and Colitis

Crohn's & Colitis Foundation of America Inc., Western PA/West Va. Chapter

Deaf/Hard of Hearing

DePaul School for Hearing and Speech
Voices Guide By Your Side of PA
Pennsylvania Office for the Deaf and Hard of Hearing (ODHH)
Steel City Interpreters
Western PA School for the Deaf

Diabetes

American Diabetes Association, Western PA Area
Children's Hospital of Pittsburgh of UPMC Diabetes Center
Juvenile Diabetes Research Foundation, W. PA Chapter
Parents of Little Ones (POLO) support groups & Parent Telephone Line

Down Syndrome

Down Syndrome Center of Western PA
Children's Hospital of Pittsburgh of UPMC

Dyslexia

International Dyslexia Association (IDA)

Epilepsy

Epilepsy Foundation of Western/Central PA

Growth Disorder

Human Growth Foundation

Guillain-Barre Syndrome

Guillain-Barre Syndrome Foundation International

Heart

American Heart Association, Pittsburgh office
Mended Little Hearts

Hemophilia

National Hemophilia Foundation, Western PA chapter

Huntingdon's Disease

Huntingdon's Disease Society of America, Western PA Chapter

Incontinence

National Association for Continence

Intellectual Disabilities

Allegheny County Department of Human Services
Office of Intellectual Disability
FamilyLinks
Supports and intake for behavioral, mental health, social and development issues.
Lifesteps Inc.
Early Intervention, family services, services for people with intellectual disabilities.
Mon-Yough Community Services, Inc.
McKeesport-based agency assisting people with substance abuse, mental health or intellectual disabilities issues.
Mon Valley Supports Coordination
Staunton Clinic of the Heritage Valley Health System
Support coordination, education, therapies for people with mental health/intellectual disabilities.

Kidney

National Kidney Foundation Serving the Alleghenies
Screening, transportation and funding assistance, medical alert jewelry.

Learning Disabilities

Learning Disabilities Association of America
Family Support System
AHEADD (Achieving in Higher Education)

Leukemia and Lymphoma

Leukemia & Lymphoma Society of America, Inc., Western PA and WVA chapter

Little People

Little People of America, Western PA Chapter

Lupus

Lupus Foundation of America, Pittsburgh Branch

Mental Health/Behavioral Health

AERI Behavioral Health Services
Evidence-based behavioral program designed to train parents with children who are 3-6 years of age and diagnosed with a Disruptive Behavior Disorder
AHEADD (Achieving in Higher Education)
Allegheny Children's Initiative Inc.
Allegheny County Department of Human Services
Office of Behavioral Health
Allegheny Family Network
Supports and advocates for families of children with emotional and mental health needs.
Children's Hospital of Pittsburgh of UPMC
Family Care Connection Centers

Provides mental health counseling and other family support.
Located in Braddock, Lawrenceville, Mt. Oliver, Rankin, and Turtle Creek.
Children's Hospital of Pittsburgh of UPMC
Child and Family Counseling Center
The Children's Institute
Behavior assessment and counseling, among other services.
FamilyLinks
Supports and intake for behavioral, mental health, social and development issues.
Holy Family Institute
Outpatient counseling and residential treatment.
InVision Human Services (formerly SharpVisions)
Behavioral health, community supports such as habilitation and short-term respite, therapeutic camps.
Jefferson Regional Medical Center
Counseling, hypnotherapy, relaxation therapy
Mon-Yough Community Services Inc.
McKeesport-based agency assisting people with substance abuse, mental health or intellectual disabilities issues.
Mon Valley Supports Coordination
National Alliance on Mental Illness (NAMI) Southwestern PA
New Story
Applied Behavior Analysis consulting and therapy; social skills, summer camp, family-based services, crisis intervention.
Samaritan Counseling Center of Western PA
Faith-based counseling.
St. Clair Hospital
Behavioral and mental health services, support groups.
Staunton Clinic of the Heritage Valley Health System
Support coordination, education, therapies for people with mental health/intellectual disabilities.
Wesley Spectrum Services
Special education, mental health, family support services, including autism.
Western Psychiatric Institute and Clinic of UPMC
Western PA Regional Center for Autism/Merck Child and Adolescent Outpatient Clinic
West Penn Allegheny Health System

Multiple Sclerosis

Multiple Sclerosis Service Society (part of CLASS)
The mission of the Multiple Sclerosis Service Society (MSSS) is to provide assistance to those diagnosed with Multiple Sclerosis through a variety of services.
National Multiple Sclerosis Society

Muscular Dystrophy

Muscular Dystrophy Association of Southwestern and Midwestern PA

Myasthenia Gravis

Myasthenia Gravis Association of Western PA Inc.

Obsessive-Compulsive Disorder

Obsessive-Compulsive Foundation of Western PA

Osteogenesis Imperfecta

Osteogenesis Imperfecta Foundation, Western PA Chapter

Ostomy

United Ostomy Association, Pittsburgh Chapter
Support for people with intestinal or bowel diversions.

Prematurity

Parent Resource Network
Sponsors annual conference on prematurity.

Prader-Willi Syndrome

The Children's Institute of Pittsburgh
Prader-Willi Syndrome Center

Respiratory

American Lung Association
American Respiratory Alliance of Western PA

Scleroderma

Scleroderma Agency of Western PA

Sickle Cell Anemia

Children's Sickle Cell Foundation, Inc.
Sickle Cell Society

Spina Bifida

Spina Bifida Association of Western Pennsylvania

Tourette Syndrome

PA Tourette Syndrome Association. Inc.
Tourette Syndrome Association of Western PA

Transplants

Transplant Recipients International Organization (TRIO)
Awareness, support, education, advocacy for transplant recipients and their families.
Center for Organ Recovery & Education (CORE)
Awareness, support, education, advocacy for transplant recipients and their families.

Vision Impairment

Blind and Vision Rehabilitation Services of Pittsburgh
Library for the Blind/Physically Handicapped
Western Pennsylvania School for Blind Children